NewsRegionBaltimore City

Actions

10-year-old Cystic Fibrosis patient receives much needed gift

Posted: 5:48 PM, Nov 08, 2019
Updated: 2019-11-08 19:54:56-05

BALTIMORE — At 10 years old, Joey Miller wants to be just like other kids, out playing with friends or his brothers.

But Joey has to deal with cCystic Fibrosis.

He's been undergoing treatments at Johns Hopkins Children's Center. It's been a lot of work and a few months ago, he got to try a new treatment called the Afflovest.

Because those with Cystic Fibrosis have to spend most of their day trying to clear mucus from their chests, the Afflovest helps in less time and allows patients to be active. It allows patients more freedom and mobility to streamline therapy, enhance airway clearance, help mobilize lung secretions and promote treatment adherance.

The only problem? It's expensive.

So, the Lea Marie Faraone Foundation stepped in and surprised Joey with the vest.

The foundation was created in honor of Lea Faraone, a former Johns Hopkins nurse and an advocate for the CF community. It was founded in December 2018 by the Faraone family after the passing of Lea who fought a long, hard battle with Cystic Fibrosis.

LMFF works to carry out the mission to enhance their quality of life while keeping the memory of Lea alive in their work.